Reliability of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) Questionnaire
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- This is an observational study: the protocol does not assign a study treatment.
- Who it may be relevant to
- Registry conditions: Scoliosis Idiopathic, Scoliosis Idiopathic Adolescent, Caregiver Anxiety. Basic parameters: from 18 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Turkey (Türkiye)
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
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Official title
Reliability of the Turkish Version of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) Questionnaire
Overview
The aim of this study is to examine the psychometric properties of the Turkish version of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) questionnaire; to evaluate the reliability of the Turkish form and to ensure its usability in clinical and research fields.
Detailed description
dependent on the involvement of families and caregivers. The emotional burden, stress, anxiety, and social limitations experienced by caregivers during the treatment process can indirectly affect both the individual's quality of life and the success of the patient's treatment. Therefore, objectively assessing the emotional and psychosocial impact experienced by caregivers of individuals with scoliosis is crucial for planning appropriate supportive interventions. The Scoliosis Caregiver Response and Emotional Scale (SCaRES), developed for this purpose, is a specific measurement tool that assesses emotional and behavioral responses to the treatment process in caregivers of individuals with scoliosis. Validity and reliability studies are required for the scale's use in different cultures and languages. Cultural differences, linguistic shifts, and healthcare system dynamics limit the scale's direct translation. Therefore, developing a Turkish version of the SCaRES is crucial for validly and reliably assessing the psychosocial burden experienced by caregivers in Turkish society. The aim of this study was to examine the psychometric properties of the Turkish version of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) and to assess its reliability and ensure its usability in clinical and research settings.
Primary outcome measures
- Scoliosis Caregiver Affect and Emotional Questionnaire Turkish Version [Time frame: through of the study, average 6 months]
Eligibility criteria
Inclusion criteria
- Individuals who are an adult (parent or primary caregiver) responsible for the care of an individual diagnosed with scoliosis between the ages of 10 and 18.
- Individuals who are able to read and understand Turkish.
- Individuals who are actively involved in the child's treatment process (e.g., use of a brace, exercise program, follow-up appointments).
- Individuals who volunteer to participate in the study.
Exclusion criteria
- Participants whose children have a history of other comorbidities (neurological, etc.),
- Children whose children have a history of spinal surgery,
- Individuals who do not have an active role in the care process (e.g., parents who only provide financial support),
- Caregivers with intellectual disabilities, serious psychiatric diagnoses, or cognitive impairments that limit communication,
- Participants with incomplete or invalid survey forms.
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Observational model
- Cohort
Study locations
Turkey (Türkiye) · 1 center
- Hasan Kalyoncu University — Gaziantep
Publications
- Motyer G, Dooley B, Kiely P, Fitzgerald A. Parents' information needs, treatment concerns, and psychological well-being when their child is diagnosed with adolescent idiopathic scoliosis: A systematic review. Patient Educ Couns. 2021 Jun;104(6):1347-1355. doi: 10.1016/j.pec.2020.11.023. Epub 2020 Nov 25. PMID 33280964
- Campbell M, Matsumoto H, St Hilaire T, Roye BD, Roye DP, Vitale MG. Burden of care in families of patients with early onset scoliosis. J Pediatr Orthop B. 2020 Nov;29(6):567-571. doi: 10.1097/BPB.0000000000000711. PMID 31895294
- Shi Z, Mao Z, Xue S, Chen G, Li S. What is the relationship between health-related quality of life among scoliosis patients and their caregiver burden? A cross-sectional study in China. BMC Psychol. 2023 Oct 19;11(1):346. doi: 10.1186/s40359-023-01375-0. PMID 37858224
- Li C, Miao J, Gao X, Zheng L, Su X, Hui H, Hu J. Factors Associated with Caregiver Burden in Primary Caregivers of Patients with Adolescent Scoliosis: A Descriptive Cross-Sectional Study. Med Sci Monit. 2018 Sep 15;24:6472-6479. doi: 10.12659/MSM.909599. PMID 30218532
- Altaf F, Gibson A, Dannawi Z, Noordeen H. Adolescent idiopathic scoliosis. BMJ. 2013 Apr 30;346:f2508. doi: 10.1136/bmj.f2508. No abstract available. PMID 23633006
- Weinstein SL, Dolan LA, Cheng JC, Danielsson A, Morcuende JA. Adolescent idiopathic scoliosis. Lancet. 2008 May 3;371(9623):1527-37. doi: 10.1016/S0140-6736(08)60658-3. PMID 18456103
- Zaina F, Ferrario I, Bakhsh HR, Donzelli S, Negrini S. SCaRES - scoliosis caregiver response and emotional scale: a Rasch-validated questionnaire to measure the psychological impact of children's scoliosis on their parents. Eur Spine J. 2025 Nov;34(11):5224-5231. doi: 10.1007/s00586-025-08983-x. Epub 2025 Jun 21. PMID 40542837
Identifiers
NCT: NCT07276178 · 2025/126