Reliability of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) Questionnaire
Ориентир для пациента и семьи
Простыми словами
Автоматическая сводка по структурированным данным реестра. Она помогает сориентироваться, но не заменяет официальный протокол или оценку врача.
- Что изучают
- Это наблюдательное исследование: исследуемое лечение участникам по протоколу не назначают.
- Кому может быть актуально
- Состояния в реестре: Scoliosis Idiopathic, Scoliosis Idiopathic Adolescent, Caregiver Anxiety. Базовые параметры: от 18 лет · Все.
- Что важно проверить
- Возраст, диагноз и пол — только базовые ориентиры. Предыдущее лечение, анализы и другие обязательные условия указаны ниже в критериях участия.
- Где проводится
- Turkey (Türkiye)
- Следующий шаг
- Сохраните исследование, покажите его лечащему врачу и уточните актуальный статус у исследовательского центра. Расходы, документы и поездка →
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Официальное название
Reliability of the Turkish Version of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) Questionnaire
Обзор
The aim of this study is to examine the psychometric properties of the Turkish version of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) questionnaire; to evaluate the reliability of the Turkish form and to ensure its usability in clinical and research fields.
Подробное описание
dependent on the involvement of families and caregivers. The emotional burden, stress, anxiety, and social limitations experienced by caregivers during the treatment process can indirectly affect both the individual's quality of life and the success of the patient's treatment. Therefore, objectively assessing the emotional and psychosocial impact experienced by caregivers of individuals with scoliosis is crucial for planning appropriate supportive interventions. The Scoliosis Caregiver Response and Emotional Scale (SCaRES), developed for this purpose, is a specific measurement tool that assesses emotional and behavioral responses to the treatment process in caregivers of individuals with scoliosis. Validity and reliability studies are required for the scale's use in different cultures and languages. Cultural differences, linguistic shifts, and healthcare system dynamics limit the scale's direct translation. Therefore, developing a Turkish version of the SCaRES is crucial for validly and reliably assessing the psychosocial burden experienced by caregivers in Turkish society. The aim of this study was to examine the psychometric properties of the Turkish version of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) and to assess its reliability and ensure its usability in clinical and research settings.
Первичные конечные точки
- Scoliosis Caregiver Affect and Emotional Questionnaire Turkish Version [Срок оценки: through of the study, average 6 months]
Критерии участия
Критерии включения
- Individuals who are an adult (parent or primary caregiver) responsible for the care of an individual diagnosed with scoliosis between the ages of 10 and 18.
- Individuals who are able to read and understand Turkish.
- Individuals who are actively involved in the child's treatment process (e.g., use of a brace, exercise program, follow-up appointments).
- Individuals who volunteer to participate in the study.
Критерии исключения
- Participants whose children have a history of other comorbidities (neurological, etc.),
- Children whose children have a history of spinal surgery,
- Individuals who do not have an active role in the care process (e.g., parents who only provide financial support),
- Caregivers with intellectual disabilities, serious psychiatric diagnoses, or cognitive impairments that limit communication,
- Participants with incomplete or invalid survey forms.
Критерии приведены из реестра в оригинале (на английском). Окончательную оценку соответствия проводит исследовательский центр.
Здоровые добровольцы: Нет
Дизайн исследования
- Модель наблюдения
- Когортное
Центры проведения
Turkey (Türkiye) · 1 центр
- Hasan Kalyoncu University — Gaziantep
Публикации
- Motyer G, Dooley B, Kiely P, Fitzgerald A. Parents' information needs, treatment concerns, and psychological well-being when their child is diagnosed with adolescent idiopathic scoliosis: A systematic review. Patient Educ Couns. 2021 Jun;104(6):1347-1355. doi: 10.1016/j.pec.2020.11.023. Epub 2020 Nov 25. PMID 33280964
- Campbell M, Matsumoto H, St Hilaire T, Roye BD, Roye DP, Vitale MG. Burden of care in families of patients with early onset scoliosis. J Pediatr Orthop B. 2020 Nov;29(6):567-571. doi: 10.1097/BPB.0000000000000711. PMID 31895294
- Shi Z, Mao Z, Xue S, Chen G, Li S. What is the relationship between health-related quality of life among scoliosis patients and their caregiver burden? A cross-sectional study in China. BMC Psychol. 2023 Oct 19;11(1):346. doi: 10.1186/s40359-023-01375-0. PMID 37858224
- Li C, Miao J, Gao X, Zheng L, Su X, Hui H, Hu J. Factors Associated with Caregiver Burden in Primary Caregivers of Patients with Adolescent Scoliosis: A Descriptive Cross-Sectional Study. Med Sci Monit. 2018 Sep 15;24:6472-6479. doi: 10.12659/MSM.909599. PMID 30218532
- Altaf F, Gibson A, Dannawi Z, Noordeen H. Adolescent idiopathic scoliosis. BMJ. 2013 Apr 30;346:f2508. doi: 10.1136/bmj.f2508. No abstract available. PMID 23633006
- Weinstein SL, Dolan LA, Cheng JC, Danielsson A, Morcuende JA. Adolescent idiopathic scoliosis. Lancet. 2008 May 3;371(9623):1527-37. doi: 10.1016/S0140-6736(08)60658-3. PMID 18456103
- Zaina F, Ferrario I, Bakhsh HR, Donzelli S, Negrini S. SCaRES - scoliosis caregiver response and emotional scale: a Rasch-validated questionnaire to measure the psychological impact of children's scoliosis on their parents. Eur Spine J. 2025 Nov;34(11):5224-5231. doi: 10.1007/s00586-025-08983-x. Epub 2025 Jun 21. PMID 40542837
Идентификаторы
NCT: NCT07276178 · 2025/126