Psychiatric Care and Education for Adolescents and Young Adults in the Ile-de-France Region: Expectations and Experiences of Young People and Parents Concerned

Обзор

Most chronic psychiatric disorders begin before the age of 18. In the most severe cases, prolonged hospitalization is essential, but this ultimately leads to harmful school dropout and social exclusion. "Care-study" hospitalizations offer comprehensive psychiatric, educational, and social care to prevent this. However, these programs have been largely under-evaluated ; only one limited and very old study has looked at the perspective of the young people concerned, and none at all has looked at their parents. Today, however, PREMS (Patient-Reported Experience Measures), which assess how users experience care (satisfaction, subjective and objective experiences, relationships with caregivers), are important indicators for improving care systems. the investigators therefore wish to gather young people's expectations regarding healthcare and education, as well as their opinions and those of their parents on their experiences in the current context, in order to evaluate and improve these systems by better meeting the expectations and needs of users.

Подробное описание

Mixed prospective (interviews) and retrospective (letters) multicenter study, qualitative and data mining (excluding Jardé law) Qualitative

The first part of the research will follow a qualitative methodology in accordance with COREQ recommendations. The aim is to gather insights from young people and one or both of their parents on the care they received in the care-study program. Two populations will be included:

* young people currently hospitalized in educational care at the end of their treatment, as well as one or both of their parents, * those who have been discharged from educational care for more than a year, as well as one or both of their parents.

All will be interviewed about their experience in educational care. The approach will be phenomenological-pragmatic, a comprehensive research paradigm. The interpretative phenomenological approach (IPA) allows for detailed and nuanced analyses of each individual's experiences. The objective of this perspective is to delve deeply into the unique universe of each individual in order to reconstruct a common meaning, a common model. In addition, it allows us to grasp and understand the experiences of a young person and one of their parents.

Data mining In order to identify young people's expectations regarding psychiatric care and education prior to admission, their letters of motivation from the last five years will be used. The analysis of this set of textual data requires the use of appropriate data mining methods. This method does not prejudge the participants' responses and aims to determine patient-centered evaluation criteria for care and education and to generate hypotheses.

Вмешательства

• Другое interview
  The first part of the research will follow a qualitative methodology in accordance with COREQ recommendations . The aim is to gather insights from young people and one or both of their parents regarding the care they received in the care-study program. Two populations will be included: * young people currently hospitalized in educational care at the end of their treatment, as well as one or both of their parents, * those who have been discharged from educational care for more than a year, as we
• Другое Data-mining
  In order to identify young people's expectations regarding psychiatric care and education prior to admission, their letters of motivation from the last two years will be used. The analysis of this textual data set requires the use of appropriate data mining methods. This method does not prejudge the participants' responses and aims to determine patient-centered evaluation criteria for care studies and to develop hypotheses that will enable the determination of young people's expectations upon ad

Первичные конечные точки

• Collect feedback [Срок оценки: letters of motivation ( data mining) day 1]

Вторичные конечные точки (1)

• interview [Срок оценки: Interview guide (interview) day 1]

Критерии участия

Критерии включения

Qualitative study: Young people receiving psychiatric care in the four centers, either currently hospitalized (close to discharge) or discharged for more than one year (between one and two years); and for each of these young people, at least one of their parents will be interviewed during a single interview (two interviews will be conducted if both parents wish to testify but a joint interview is not possible).

Data mining study: Young high school students receiving psychiatric care in the four centers in 2020, 2021,2022,2023,2024 and 2025

Критерии исключения

Qualitative study: Refusal to participate Data mining study: Opposition to the use of data.

Критерии приведены из реестра в оригинале (на английском). Окончательную оценку соответствия проводит исследовательский центр.

Здоровые добровольцы: Нет

Дизайн исследования

Модель наблюдения

Когортное

Центры проведения

Список центров уточняется — проверьте первичный протокол.

Идентификаторы

NCT: NCT07476131 · 2026-A00545-46

Первоисточники (государственные реестры)

• ClinicalTrials.gov (NIH, США)

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