Patient Experiences and the Role of Team Structures in Pulmonary Rehabilitation in Türkiye

Официальное название

Patient Experiences and the Role of Team Structures in Pulmonary Rehabilitation in Türkiye: The PRETTY Study - A National, Multicenter, Cross-Sectional Observational Study

Обзор

The PRETTY Study aims to evaluate patient satisfaction with pulmonary rehabilitation (PR) services across Türkiye and to investigate how satisfaction levels are related to the organizational structures and team compositions of the PR programs. This national, multicenter, cross-sectional observational study will also identify structural and organizational factors that may enhance patient-centered care and promote the standardization of PR services.

Вмешательства

• Другое Patient Satisfaction Questionnaire
  An online survey designed to assess patient experiences and satisfaction levels with pulmonary rehabilitation (PR) programs. The questionnaire covers aspects such as accessibility, communication, program structure, perceived outcomes, and overall satisfaction. It is administered via Google Forms and completed voluntarily by patients who have completed a PR program.
• Другое Institutional Survey on PR Program Structure and Team Composition
  A structured online questionnaire completed by the designated PR program coordinator or team member. It includes questions on organizational features of the PR program, such as team composition, session frequency, assessment tools, referral and admission

Первичные конечные точки

• Patient Satisfaction Questionnaire [Срок оценки: Within 4 weeks after completion of the pulmonary rehabilitation program]
• Institutional Survey on PR Program Structure and Team Composition [Срок оценки: Within 4 weeks after completion of the pulmonary rehabilitation program]

Критерии участия

Patient Inclusion Criteria:

• Age ≥18 years
• Diagnosed with a respiratory condition (e.g., COPD, interstitial lung disease, asthma, bronchiectasis, etc.)
• Completed a structured PR program (minimum duration and frequency as defined by national guidelines or center-specific protocols)
• Willing and able to complete the online Patient Satisfaction Questionnaire
• Able to provide informed consent

Patient Exclusion Criteria:

• Ongoing participation in a PR program (only completed cases will be included)
• Inability to complete the questionnaire due to cognitive or language barriers without a caregiver

Coordinator Inclusion Criteria:

• Officially designated as the PR program coordinator or responsible team member
• Affiliated with a healthcare institution (public, university-affiliated, or private) in Türkiye that provides PR services
• Willing to complete the Institutional Survey Form regarding team structure, service delivery, and organizational characteristics
• Authorized by the institution to provide structural data related to the PR unit

Coordinator Exclusion Criteria:

• PR services provided on an informal or ad-hoc basis without a designated team or structure
• Institutions not offering a structured PR program

Критерии приведены из реестра в оригинале (на английском). Окончательную оценку соответствия проводит исследовательский центр.

Дизайн исследования

Модель наблюдения

Когортное

Центры проведения

Turkey (Türkiye) · 1 центр

• Saglik Bilimleri Universitesi — Istanbul

Идентификаторы

NCT: NCT06998550 · PRETTY Study

Первоисточники (государственные реестры)

• ClinicalTrials.gov (NIH, США)

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