Идёт набор NCT06502054

Parenting with an Autism Spectrum Disorder

— Наблюдательное Autism Spectrum Disorder

Ориентир для пациента и семьи

Простыми словами

Автоматическая сводка по структурированным данным реестра. Она помогает сориентироваться, но не заменяет официальный протокол или оценку врача.

Что изучают: Это наблюдательное исследование: исследуемое лечение участникам по протоколу не назначают.
Кому может быть актуально: Состояния в реестре: Autism Spectrum Disorder. Базовые параметры: от 18 лет · Все.
Что важно проверить: Возраст, диагноз и пол — только базовые ориентиры. Предыдущее лечение, анализы и другие обязательные условия указаны ниже в критериях участия.
Где проводится: Германия
Следующий шаг: Сохраните исследование, покажите его лечащему врачу и уточните актуальный статус у исследовательского центра. Расходы, документы и поездка →

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Официальное название

Being a Parent with an Autism Spectrum Disorder: Strengths, Challenges and Adaptation of a Mentalization-based Parenting Program

Обзор

In many individuals, Autism Spectrum Disorder (ASD) is recognized and diagnosed late in adolescence or even in adulthood, despite the presence of long-standing impairments and distress. One area that has received little attention so far is research and interventions in clinical practice that relate to the experienced realities of parenthood for autistic adults or offer support in this context. The few existing research findings in this field suggest that parents with ASD might face specific challenges. At the same time, there is a lack of empirical research on the experiences autistic adults have with parenthood, whether they perceive a need for specific support services, and, if so, what those services should look like. To fill this research gap, this study aims to examine the mental health, needs, and strengths of parents with ASD. Particular focus will be given to parental stress and difficulties in the areas of mentalization and emotion regulation, which can increase the risk of psychological comorbidities. Using a mixed-methods approach, the study will investigate to what extent an already established parenting program or an adaptation thereof might be suitable to address the specific requirements of autistic parents and enhance their parenting skills.

Первичные конечные точки

Mentalization [Срок оценки: Baseline assessment]

Вторичные конечные точки (4)

Autistic Traits [Срок оценки: Baseline assessment]
Parental Quality of Life [Срок оценки: Baseline assessment]
Parental mental health [Срок оценки: Baseline assessment]
Children mental health [Срок оценки: Baseline assessment]

Критерии участия

In- and exclusion criteria for the study population:

Критерии включения

Parents who fulfill the main diagnosis of ASD, including atypical autism (ICD-10: F84.1) and Asperger syndrome (ICD-10: F84.5)
Age ≥ 18 years
Have a child aged 0 to 6 years

Критерии исключения

Below-average general cognitive ability (according to clinical impression)
Lack of German language skills
Severe visual or hearing impairment (uncorrected)
Serious neurological and psychiatric illnesses (e.g., epilepsy, psychoses)
Acute suicidal tendencies (according to clinical findings)

Eligibility Criteria for the Control Group

Критерии включения

Parents without a lifetime main diagnosis of a psychiatric illness (ICD-10-GM-2016: F10 - F69)
Age ≥ 18 years
Have a child aged 0 to 6 years
Matched to the study group in terms of age and gender