Идёт набор NCT06177990

Caregiver as Navigator: Develop Skills Online (CAN-DO)

Без фазы С лечением Dementia

Ориентир для пациента и семьи

Простыми словами

Автоматическая сводка по структурированным данным реестра. Она помогает сориентироваться, но не заменяет официальный протокол или оценку врача.

Что изучают: В протоколе указаны: Caregiver as Navigator: Develop Skills Online (CAN-DO) program, Healthy Living online course.
Кому может быть актуально: Состояния в реестре: Dementia. Базовые параметры: от 18 лет · Все.
Что важно проверить: Возраст, диагноз и пол — только базовые ориентиры. Предыдущее лечение, анализы и другие обязательные условия указаны ниже в критериях участия.
Где проводится: США
Следующий шаг: Сохраните исследование, покажите его лечащему врачу и уточните актуальный статус у исследовательского центра. Расходы, документы и поездка →

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Официальное название

Caregiver as Navigator: Develop Skills Online (CAN-DO) Developing Dementia Family Caregiver Mastery for Navigating Complex Health, Social Service, Legal, Financial, and Family Systems

Обзор

This study is designed to learn more about ways to promote caregiver mastery online. 270 dementia family caregivers will be enrolled and randomized to take the CAN-DO online course immediately or after a waiting period. They will participate in interviews before and after the course; total time of study participation is 6 months.

Подробное описание

Family members and friends are the core of the uncoordinated system of care that tenuously maintains persons living with dementia in their community settings and delays their placement into more costly settings of institutional care, providing more contributed and out of pocket care support than Medicare and Medicaid combined.

The CAN-DO program fills a significant gap in caregiver psychoeducation programming by focusing not principally on day-to-day care management but on the many substantial system navigation tasks that caregivers assume. Supported by preliminary efficacy data, CAN-DO will employ state-of-the art asynchronous interactive learning methods to enhance caregivers' mastery of skills and confidence to navigate healthcare and other (legal, financial, social service, and family) systems that are crucial to the continued community living of persons affected with dementia illnesses.

This study will enroll 270 dementia family caregivers who will be randomized to take the CAN-DO course immediately or after a waiting period. They will participate in interviews before and after the course; total time of study participation is 6 months.

Вмешательства

Другое Caregiver as Navigator: Develop Skills Online (CAN-DO) program
Online, asynchronous psychoeducation program for dementia family caregivers. The program is meant to enhance caregivers' knowledge and skills for navigating healthcare, financial, legal, and family systems. The program has three main sections. * The first section provides information and how to prepare for using the healthcare system and community-based services in dementia care and support. * The second provides information about how to be more effective when using the financial and legal sys
Другое Healthy Living online course
Online program for dementia family caregivers about "Healthy Living" for the first 4 months post-randomization.

Первичные конечные точки

Change in Pearlin Caregiver Stress Scales score [Срок оценки: Baseline, 2, 4, 6, and 8 months post-intervention]
Change in Caregiver Assessment of Behavioral Skill scale score [Срок оценки: Baseline, 2, 4, 6, and 8 months post-intervention]
Change in State-Trait Anxiety Scale score [Срок оценки: Baseline, 2, 4, 6, and 8 months post-intervention]
Change in Perceived Stress Scale score [Срок оценки: Baseline, 2, 4, 6, and 8 months post-intervention]
Change in Caregiver Burden Index [Срок оценки: Baseline, 2, 4, 6, and 8 months post-intervention]
Change in Dyadic Relationship Scale score [Срок оценки: Baseline, 2, 4, 6, and 8 months post-intervention]

Вторичные конечные точки (2)

Change in Revised Memory and Behavior Problem Checklist score [Срок оценки: Baseline, 2, 4, 6, and 8 months post-intervention]
Change in Quality of Life in Alzheimer's score [Срок оценки: Baseline, 2, 4, 6, and 8 months post-intervention]

Критерии участия

Критерии включения

Family member or friend providing at least 4 hours per week of informal care for a community-dwelling person living with ADRD
18 years or older
Has internet access
Does not have to co-reside with the individual
Understands, speaks, and reads English