Workshops and Exchange Groups for Laryngectomized Patients

In the ENT department of Bichat Hospital, there is an average of fourteen surgeries of this type per year, over the last three years. The direct consequences of total laryngectomy are multiple:

* loss of phonation (voice) and need to learn to speak again through speech therapy; * Disappearance of oral-nasal breathing (and therefore loss of smell, or even taste); * Disappearance of the capacity of the effort with closed glottis (used in the acts of daily life: defecation, sexual act in men, etc.); * Impairment of body image and sometimes self-esteem.

For these reasons, it is essential to accompany patients post-operative to help them understand their body image and mitigate the direct and indirect consequences of this intervention. There are very few organizations to assist these patients in this life change.

To support laryngectomized patients, the study will test and validate the creation of self-help and support groups. The study will include laryngectomized patients who wish and can participate in these groups.

The sessions will take place as follows:

* 1st: presentation of each, answers to questions; * 2nd: intervention of the association of the mutilated of the voice; * 3rd: questions / answers with a resource patient (laryngectomized for 13 years in Bichat); * 4th: grouping of all participants to assess patient satisfaction.

To assess the benefit of these meetings, a global quality of life questionnaire (WHOQOL-BREF) and an ENT-specific questionnaire (EORTC QLQH\&n43) will be given to patients before the first session and retrieved beforehand. The patient will be able to participate in the sessions only if the questionnaires are submitted. The questionnaires are accompanied by a free text part, so that the person fills in the keys that the workshops have brought him. Patients who cannot participate in the exchange groups for geographical or personal reasons will constitute a control group. They will also complete the two questionnaires four months apart. The number of patients registered and the participation rate at each session will be evaluated.

• For overall quality of life using the WHOQOL-BREF questionnaire, comparison of the average patient scores, before and after exchange groups. [Срок оценки: 4 months]
• For ENT-specific quality of life using the EORTC QLQH&n43 questionnaire, comparison of the average patient scores, before and after exchange groups. [Срок оценки: 4 months]
• Evaluation of the participation rate (number of patients present out of the number of patients enrolled), during each session via the OVET software. [Срок оценки: 4 months]