Wheelchair Positioning and Neuromuscular Diseases

Neuromuscular diseases are genetic diseases of the muscle or its innervation (nerve connection) causing respiratory, cardiac and especially motor difficulties which may require use of wheelchair. However there is no standardized positioning protocol, so it seems interesting to us to study wheelchair positioning in neuromuscular diseases).

The purpose of this study is to describe sitting posture in the wheelchair in patients with neuromuscular disease, pain associated with using the wheelchair, but also to assess the effectiveness of the recommended equipment making the same evaluations in follow-up consultation (a few months after receipt of the prescribed TAP).

Posture is assessed by the tool: Measurement of Postural Control in Seated Postural Control Measure for Adults 2.0 (SPCMA 2.0), which is a validated tool.

Pain is assessed by a Simple Verbal Scale or by a Visual Analog Scale. This database could allow providing guidelines of good practice, for wheelchair positioning for patients with neuromuscular disease.

• Comparison of pain associated with using the wheelchair [Срок оценки: At the beginning and the end of the study (before positioning equipment and few months after use), an average of 6 months]
• Assessment of the incidence of pressure ulcers associated with sitting in NMD [Срок оценки: At the beginning and the end of the study (before positioning equipment and few months after use), an average of 6 months]
• Assessment of the proportion of technical postural aids prescribed for patients who accept the positioning equipment [Срок оценки: At the end of the study, an average of 6 months]
• Assessment of the technical postural aids efficacy [Срок оценки: At the beginning and the end of the study (before positioning equipment and few months after use), an average of 6 months]