Understanding Vision Problems Linked to the Brain and Nerves in People Seen at Our Eye Clinic.
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- The protocol lists: No Intervention: Observational Cohort.
- Who it may be relevant to
- Registry conditions: Neuro-ophthalmological Conditions. Basic parameters: from 18 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Center list to be confirmed — check the primary protocol.
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
Unsure about the terms? Read our patient guide →
Official title
Epidemiological Study of Neuro-ophthalmological Presentations in an Eye Department in the UK
Overview
The reason for the recognised lack of epidemiological data of all NO conditions presenting to eye departments is attributed to the fact that they often fall in the grey zones between neuro-ophthalmologists, neurosurgeons and neurologists. . It is anticipated that the findings of the study may then help to support better service planning and resource allocation, as well as identifying any early recognition of rare or emerging patterns.
Detailed description
The current study proposes to collect prospective data on patients seen within an eye department in the UK. The findings of such a prospective study will help to improve understanding of the NO disease burden and temporal trends. It will also help to further identify the demographic and systemic associations of NO conditions. It is anticipated that the findings of the study may then help to support better service planning and resource allocation, as well as identifying any early recognition of rare or emerging patterns. This may help to design clinics with the view to incorporate identifiable multidisciplinary inputs from neurology, neuro-surgery, radiology and emergency services, who are the recognised key stakeholders for the management of NO conditions. Real-world data in such a cohort of NO conditions may also help to detect rare associations or novel disease presentations.
Interventions
- Other No Intervention: Observational Cohort
no intervention required
Primary outcome measures
- Analysis of the incidence and patterns of presentation of common NO conditions compared to other published studies. [Time frame: From enrollment to 12 months]
Secondary outcome measures (2)
- Concordance rates between initial and final diagnosis. [Time frame: From enrollment to 12 months]
- Detailed analysis of rare presentations, with a view to share knowledge gained from this in educational meetings. [Time frame: From enrollment to 12 months]
Eligibility criteria
Inclusion criteria
- 1\. Participants aged ≥ 18 years. 2. Participants seen at the Royal Wolverhampton NHS Trust's Eye Department. 3. Participants with a diagnosis of NO.
Exclusion criteria
- 1\. Participants aged < 18 years. 2. Participants who do not have a diagnosis of NO. 3. Participants who have opted out of their data being used for research (National Data Opt-out).
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Study design
- Observational model
- Cohort
Study locations
Center list to be confirmed — check the primary protocol.
Identifiers
NCT: NCT07711886 · 2026EYE149