Burden of Care and Health Literacy of Caregivers in the Emergency Department
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- This is an observational study: the protocol does not assign a study treatment.
- Who it may be relevant to
- Registry conditions: Caregiver Burden, Health Literacy, Chronic Disease, Emergency Service Utilization. Basic parameters: from 18 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Center list to be confirmed — check the primary protocol.
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
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Official title
The Relationship Between Caregiver Burden and Health Literacy Among Caregivers of Patients With Chronic Diseases Presenting to the Emergency Department
Overview
This study aims to investigate the relationship between caregiver burden and health literacy among primary caregivers of patients with chronic diseases presenting to the emergency department. The study will be conducted in the Emergency Department of Yalova Training and Research Hospital and will include at least 300 caregivers. Data will be collected using a sociodemographic questionnaire, the Turkish Health Literacy Scale-32 (THLS-32), and the Zarit Burden Interview (ZBI). The findings are expected to contribute to a better understanding of caregivers' needs and to clarify the role of health literacy in caregiver burden among those providing care for individuals with chronic illnesses.
Detailed description
This study is planned to investigate the relationship between caregiver burden and health literacy among primary caregivers of patients with chronic diseases presenting to the emergency department. The role of primary caregivers in the management of chronic illnesses is critical, and their ability to access, understand, evaluate, and apply health-related information (health literacy) may influence both the quality of care provided and the utilization of emergency healthcare services.
The study will be conducted with at least 300 primary caregivers of patients admitted to the Emergency Department of Yalova Training and Research Hospital. Data will be collected using a sociodemographic questionnaire, the Turkish Health Literacy Scale-32 (THLS-32), and the Zarit Burden Interview (ZBI). The findings are expected to contribute to the identification of caregiver needs and provide evidence for the development of healthcare policies aimed at improving caregiver support and promoting the more efficient use of emergency healthcare services.
Primary outcome measures
- Caregiver Burden Level (Zarit Burden Interview) [Time frame: At the time of the face-to-face interview (approximately 15-20 minutes).]
Eligibility criteria
The patient having visited the Yalova Training and Research Hospital Emergency Department.
Being at least 18 years of age. Being cognitively capable of answering the data collection tools (scales/questionnaires).
Volunteering to participate in the study and providing informed consent.
Exclusion criteria
Refusal to participate in the research voluntarily. Not being the primary caregiver for the patient. Inability to communicate or complete the scales due to cognitive or language barriers.
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Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: Yes
Study design
- Observational model
- Other
Study locations
Center list to be confirmed — check the primary protocol.
Identifiers
NCT: NCT07666373 · HULYA-2026-1