Textual Analysis of Narratives Produced by Adolescent Oncology Patients: A Research Project
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- This is an observational study: the protocol does not assign a study treatment.
- Who it may be relevant to
- Registry conditions: Cancer. Basic parameters: 13 years — 25 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Italy
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
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Overview
This research project builds on a long-standing tradition within our Institute of documenting "free thoughts" and personal reflections shared by adolescent oncology patients and their families. These narratives, collected through "logbooks" in ward rooms and during dedicated events-including those focused on the COVID-19 pandemic-represent a profound tool for patients to reclaim their identity beyond their diagnosis. The aim is to stimulate and collect patient narratives to better understand their emotional and lived experiences. By analyzing these spontaneous writings, the study aims to improve clinical practice, enhance the patient-provider relationship, and optimize the overall healthcare organization.
Primary outcome measures
- Thematic Analysis of Patient Narratives [Time frame: 10 years]
- Structural Analysis of the text [Time frame: 10 years]
- Stylistic Analysis [Time frame: 10 years]
- Processual Analysis [Time frame: 10 years]
Eligibility criteria
Inclusion criteria
- adolescents and young adults treated at the Area giovani CRO from 2021
- willing to participate at the study
Exclusion criteria
- absence of informed consent
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Observational model
- Cohort
Study locations
Italy · 1 center
- Centro di Riferimento Oncologico di Aviano (CRO) IRCCS — Aviano
Identifiers
NCT: NCT07527416 · CRO-2021-039