Relationship Between Upper Limb Function and Participation in Hemiplegic cp
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- This is an observational study: the protocol does not assign a study treatment.
- Who it may be relevant to
- Registry conditions: Quality of Upper Limb Function, Participation Activities, Hemiplegic CP. Basic parameters: 5 years — 8 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Egypt
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
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Official title
Relationship Between Quality of Upper Limb Function and Participation Activities of Children With Hemiplegic Cerebral Palsy
Overview
The study will be conducted to * Assess quality of upper limb function in children with hemiplegic CP. * Assess participation activities of children with hemiplegic CP. * Assess the relationship between quality of upper limb function and participation activities of children with hemiplegic CP.
Detailed description
Children with HCP are faced with a variety of motor and sensory impairments that have an impact on their arm and hand functioning. Upper limb activity limitations reflect the difficulties experienced during reaching, grasping, manipulating and releasing objects with the hemiplegic arm and hand.
As a result, those children may choose to use their "less-affected" hand instead of the affected hand due to difficulties in using it . Although they can complete certain bimanual tasks primarily using one hand through compensatory strategies, the time required to accomplish these tasks is typically longer than their peers.
An important outcome of rehabilitation services is to optimize children's participation in different life situations such as home, school and in the community .Participation in family and recreational activities provides avenues for children to play, learn skills, make friends and develop self-confidence and belonging. Understanding the link between manual ability and participation is essential in pediatric rehabilitation for children with HCP. Adequate assessment of upper limb function in those children is crucial not only to outline treatment, but also to measure the efficacy of their participation in life areas activities and to allow follow-up over time.
This study highlights how limitations in upper limb manual ability can restrict participation in life areas activities of those children, so it can guide goal-setting in both occupational therapy and physical therapy, emphasizing activities that promote both hand function and participation in life areas activities. Simultaneously this study supports the movement of the growing trend in family-centered and participation-focused therapy.
Primary outcome measures
- Quality of upper limb function will be evaluated using the Quality of Upper Extremity Skills Test (QUEST). [Time frame: 4 months]
- Child and Adolescent Scale of Participation will be used to assess child participation. [Time frame: 4 months]
Eligibility criteria
Inclusion criteria
- Children diagnosed with hemiplegic cerebral palsy.
- Both genders will be included.
- Children's age will be ranging from 5 to 8 years.
- The degree of spasticity in affected upper limb ranges from grade 1, 1+ and 2 according to Modified Ashworth Scale.
- Children are able to understand and respond to simple instructions.
- Children in inclusion education system.
- Parents are of nearly the same socioeconomic level and must have at least an average level of education.
Exclusion criteria
- Children will be excluded in the presence of the following:
- Severe visual, auditory or perceptual impairment that interfere with the evaluation program.
- Botulinum toxin injection in upper limb or recent orthopedic surgery within last 6 months (Alkan and Bingol,2021).
- Fixed deformities in the affected upper limb. Significant mental or psychological problems that interfere with understanding instructions.
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Observational model
- Other
Study locations
Egypt · 1 center
- Outpatient clinic of faculty of physical therapy — Cairo
Publications
- Krumlinde-Sundholm, L., & Wagner, L. V. (2020). Upper Extremity Assessment and Outcome Evaluation in Cerebral Palsy. Cerebral Palsy, 1569-1597.
- Rich TL, Menk JS, Rudser KD, Feyma T, Gillick BT. Less-Affected Hand Function in Children With Hemiparetic Unilateral Cerebral Palsy: A Comparison Study With Typically Developing Peers. Neurorehabil Neural Repair. 2017 Oct-Nov;31(10-11):965-976. doi: 10.1177/1545968317739997. Epub 2017 Nov 12. PMID 29130382
- Pashmdarfard M, Shervin Badv R. The Impact of Manual Ability Level on Participation of Children with Cerebral Palsy in Life Areas: A Cross-Sectional Study. Iran J Child Neurol. 2019 Summer;13(3):83-91. PMID 31327972
- Park H, Choi JY, Yi SH, Park ES, Shim D, Choi TY, Rha DW. Relationship between the more-affected upper limb function and daily activity performance in children with cerebral palsy: a cross-sectional study. BMC Pediatr. 2021 Oct 19;21(1):459. doi: 10.1186/s12887-021-02927-2. PMID 34666730
- Bingöl, H., Günel, M., & Sel, S. A. (2024). Investigation of differences between the representatives of the high-to moderate functional status according to upper limb functions and participation in children with congenital hemiplegic cerebral palsy: A cross-sectional study. Bingöl Üniversitesi Sağlık Dergisi, 5(1), 1-10.
- Alghamdi MS, Chiarello LA, Palisano RJ, McCoy SW. Understanding participation of children with cerebral palsy in family and recreational activities. Res Dev Disabil. 2017 Oct;69:96-104. doi: 10.1016/j.ridd.2017.07.006. Epub 2017 Aug 30. PMID 28843215
- Alkan H and Bingöl H (2021). The effect of the function of forearm supination on participation activities and communication skills of children with Hemiparetic Cerebral Palsy. Hacettepe University Faculty of Health Sciences Journal. Dec 31;8(3):487-99.
Identifiers
NCT: NCT07497100 · P.T.REC/012/006277