Health Engagement & Access Through Learning, Training, and Health-coaching With People With Intellectual and/or Developmental Disabilities
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- The protocol lists: Comprehensive Community Health, Regular Special Olympics programming.
- Who it may be relevant to
- Registry conditions: Intellectual Disabilities, Developmental Disability. Basic parameters: 21 years — 65 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- United States
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
Unsure about the terms? Read our patient guide →
Official title
Comparing a Group Psychoeducational Health Intervention to Special Olympics Health Programming on Improving Access to Best Practice Health Care for Adults With Intellectual and Developmental Disabilities
Overview
The purpose of this study is to see if a combination of an educational curriculum and health coaching embedded within Special Olympics improves health outcomes and healthcare access compared to regular Special Olympics sport and health programming for adults with intellectual and/or developmental disabilities.
Interventions
- Behavioral Comprehensive Community Health
Participants will receive group health coaching, psychoeducation, and group health education. - Other Regular Special Olympics programming
Standard practices for those participating in Special Olympics
Primary outcome measures
- Change in Goal Attainment Scaling (GAS) [Time frame: Baseline to 1, 3, 6, 12, and 18 months]
Secondary outcome measures (7)
- Change in number of doctor visits [Time frame: Baseline, 1, 3, 6, 12, and 18 months]
- Change in number of routine health check-ups [Time frame: Baseline, 1, 3, 6, 12, and 18 months]
- Change in number of participants with intellectual and/or developmental disabilities that follow-up with their primary physician [Time frame: Baseline, 1, 3, 6, 12, and 18 months]
- Change in quality of life - "Healthy Days Measure" [Time frame: Baseline, 1, 3, 6, 12, and 18 months]
- Change in healthcare access satisfaction [Time frame: Baseline, 3, 12, and 18 months post-intervention]
- Change in healthcare use satisfaction [Time frame: Baseline, 3, 12, and 18 months post-intervention]
- Change in self-advocacy [Time frame: Baseline, 3, 12, and 18 months post-intervention]
Eligibility criteria
Inclusion Criteria - Special Olympic Athletes:
- Currently participating in Special Olympics programming at a state agency in the study
- Has a medical or educational diagnosis of intellectual and/or developmental disabilities
- Between the ages of 21-65
- Has at least weekly contact with a family member or care partner who is willing and able to participate
- Fluent in English
Inclusion Criteria - Care Partner:
- Care partner for the participating Special Olympic Participant/Athlete
- At least 21 years of age
- Has at least weekly contact with Special Olympic Participant/Athlete who is willing and able to participate
- Fluent in English
Exclusion Criteria - all:
- Inability to complete an accessible informed assent or consent process
- Fluctuating capacity to consent
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Allocation
- Randomized
- Model
- Parallel assignment
- Masking
- Open label
- Primary purpose
- Health services research
Study locations
United States · 1 center
- Department of Kinesiology, University of Wisconsin — Madison
Identifiers
NCT: NCT07475117 · 2025-1872 · #IDD-2024C1-37360 · Protocol Version 12/19/25 · SOE | Kinesiology Operations