Dementia and Storytelling in Vietnam
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- The protocol lists: Storytelling intervention, Basic information.
- Who it may be relevant to
- Registry conditions: Alzheimer Dementia (AD). Basic parameters: from 60 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Vietnam
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
Unsure about the terms? Read our patient guide →
Official title
Digital Storytelling to Promote Early Dementia Diagnosis in Rural Vietnam
Overview
This project aims to improve knowledge regarding Alzheimer's dementia and related dementias (ADRD) among older adults and their caregivers in Vietnam and promote the early diagnosis of ADRD using a digital storytelling intervention.
Detailed description
This study will develop and test a Digital Storytelling intervention to improve older adults' and caregivers' knowledge of ADRD and to facilitate early diagnosis in rural areas of Vietnam. The Digital Storytelling Intervention includes interactive multimedia modules for motivating behavior change and improving knowledge and attitudes toward ADRD among older adults and their caregivers through the power and voices of patients with mild to moderate ADRD, older persons with cognitive concerns, and their caregivers. Mobile Health technology (Computerized Intervention Authoring System - CIAS) will be used to deliver the intervention.
Interventions
- Behavioral Storytelling intervention
Participants will receive a digital storytelling intervention featuring narratives from older adults with mild to moderate Alzheimer's disease and related dementias (ADRD) and their caregivers who have successfully managed the condition. The stories highlight the benefits of early ADRD diagnosis and strategies for managing diagnostic and care-related challenges. The intervention will be delivered at baseline and biweekly thereafter for three months via CIAS, with didactic "Learn More" modules pr - Behavioral Basic information
Participants will receive basic information about Alzheimer's disease and related dementias (ADRD), issued by the Vietnam Ministry of Health (usual care), at baseline and at Month 3.
Primary outcome measures
- Intervention Feasibility: Participant Recruitment and Retention [Time frame: Baseline, Month 3, Month 6]
- Intervention Engagement: Interaction Records from CIAS [Time frame: Month 3, Month 6]
- Intervention Engagement: Exit Interview [Time frame: Month 6]
- Intervention Acceptability: System Usability Scale (SUS) [Time frame: Month 3, Month 6]
- ADRD Knowledge: Dementia Knowledge Assessment Scale (DKAS) [Time frame: Baseline, Month 3, Month 6]
- Attitudes: Dementia Attitude Scale (DAS) [Time frame: Baseline, Month 3, Month 6]
Secondary outcome measures (3)
- ADRD Screening/Diagnosis [Time frame: Month 3, Month 6]
- Quality of Life: SF-12 [Time frame: Baseline, Month 3, Month 6]
- Self-Care: The Self-Care of Chronic Illness Inventory (SC-CII) [Time frame: Baseline, Month 3, Month 6]
Eligibility criteria
Inclusion criteria
- Older adults (age ≥ 60 years) residing in one of the four participating communities (communities in rural areas of Phu Tho province with minimum distance of 10 km between participating communities)
- Concern about mild cognitive impairment expressed by the participant, caregiver, or healthcare provider, with no formal screening for ADRD
- Ability and willingness to provide informed consent
- Caregivers of eligible participants will be invited to participate after providing written consent.
Exclusion criteria
- Current participation in another ADRD study
- Severe cognitive impairment as evaluated by study co-investigators
- Enrollment in palliative care or diagnosis of a terminal illness
- Previous exposure to digital storytelling modules
- Prior participation in the digital storytelling development.
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Allocation
- Randomized
- Model
- Parallel assignment
- Masking
- Single blind
- Primary purpose
- Diagnostic
Study locations
Vietnam · 1 center
- Vietnam National Geriatric Hospital — Hanoi
Publications
- Khanh, D. V. D., Van Thang, V., Dung, H., & BinhThang, T. (2015). Prevalence of dementia among the elderly and health care needs for people living with dementiain an urban community of central Vietnam. Vietnam Journal of Public Health-www. vjph. org, 3(1).
- Nguyen HL, Ha DA, Tran OT, Phan VH, Nguyen CT, Nguyen GH, Nguyen TT, Le TT, Goldberg RJ, Wang B, Tang ET, Chiriboga G, Budhwani H, Allison JJ. Conquering hypertension in Vietnam: 12- month follow up results from a cluster-randomised controlled trial. Lancet Reg Health West Pac. 2024 Jul 1;48:101123. doi: 10.1016/j.lanwpc.2024.101123. eCollection 2024 Jul. PMID 39045484
- Nguyen HL, Ha DA, Goldberg RJ, Kiefe CI, Chiriboga G, Ly HN, Nguyen CK, Phan NT, Vu NC, Nguyen QP, Allison JJ. Culturally adaptive storytelling intervention versus didactic intervention to improve hypertension control in Vietnam- 12 month follow up results: A cluster randomized controlled feasibility trial. PLoS One. 2018 Dec 31;13(12):e0209912. doi: 10.1371/journal.pone.0209912. eCollection 2018. PMID 30596749
- Huynh-Truong HL, Shyu YL, Tran TKL, Huang HL, Do VA. Dementia care practices among community healthcare workers in Vietnam: a qualitative descriptive study. BMC Geriatr. 2023 Sep 14;23(1):562. doi: 10.1186/s12877-023-04199-0. PMID 37710164
Identifiers
NCT: NCT07431528 · STUDY00002680 · 25HSR-ADRD-1487208