Palliative Care and The Terminally Ill Adults (End of Life) Bill
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- This is an observational study: the protocol does not assign a study treatment.
- Who it may be relevant to
- Registry conditions: Assisted Dying, Palliative Care. Basic parameters: 18 years — 80 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Center list to be confirmed — check the primary protocol.
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
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Official title
The Potential Impact of the Terminally Ill Adults (End of Life) Bill on the Professional Identity of Palliative Care Staff
Overview
The current study aims to investigate the potential impact of the proposed Assisted Dying (Terminally Ill Adults (2024) Bill on Palliative care workers. Palliative care professionals across the Humber Health Partnership will be interviewed using semi-structured interview questions, with the intention of exploring the way they make sense of the potential implementation of the bill, particularly in relation to their professional identity. The research will be carried out in line with guidance for Interpretative Phenomenological Analysis (Smith, Flowers \& Larkin, 2021), a research methodology which aims to explore how people make sense of their experience, often in response to a particular event. It is hoped that the study will contribute to the ongoing discussions regarding how the bill should be implemented and offer potential insights into ways that hospitals may best support staff during the passing of the bill into law. The study will be sponsored by Hull University Teaching Hospitals Trust (HUTH).
Primary outcome measures
- Experiential themes [Time frame: Taken at the point of interview, two weeks after recruitment.]
Eligibility criteria
Inclusion criteria
- Palliative care staff, including Palliative nurses, Doctors and Consultants.
- Registered with the appropriate professional registration body
- Must have been in qualified position and working in palliative care for at least 6 months
- Must have worked with palliative patients in the last three months
- Fluency in English
Exclusion criteria
- No direct contact with patients
- Must be in a directly caring role within the team (does not include administrative or housekeeping staff).
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: Yes
Study design
- Observational model
- Case-only
Study locations
Center list to be confirmed — check the primary protocol.
Identifiers
NCT: NCT07427550 · 354875