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Recruiting NCT07381179

Voices: Messages of Wisdom and Hope in the Face of Illness

— Observational Hematopoietic and Lymphatic System Neoplasm Malignant Solid Neoplasm

For patients and families

In plain language

An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.

What is being studied
The protocol lists: Non-Interventional Study.
Who it may be relevant to
Registry conditions: Hematopoietic and Lymphatic System Neoplasm, Malignant Solid Neoplasm. Basic parameters: from 18 years · All.
What needs checking
Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
Where it takes place
United States
Next step
Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →

Unsure about the terms? Read our patient guide →

Overview

This study may help doctors determine where patients and caregivers may need more support and identify ways to maintain patient and caregiver dignity while undergoing treatment.

Detailed description

PRIMARY OBJECTIVE:

I. Change in patient dignity impact scale scores prior to and after completion of patient and caregiver recordings.

OUTLINE: This is an observational study.

Patients and their caregivers complete an interview and survey on study. Patients also have their medical records reviewed on study.

Interventions

  • Other Non-Interventional Study
    Non-interventional study

Primary outcome measures

  • Change in patient dignity impact [Time frame: Baseline (before and after recording)]

Eligibility criteria

Inclusion criteria

  • Age ≥ 18 years
  • Diagnosis of chronic or progressive illness with a primary caregiver, should patient wish to involve one
  • Willing and able to participate in a semi-structured recording lasting approximately 60 minutes. Dyad recordings conducted for participants who elect to involve a caregiver
  • Willing and able to participate in a single follow-up recording. Dyad follow up recordings conducted for participants who elect to involve a caregiver

Exclusion criteria

  • Uncontrolled and/or intercurrent illness which limits participation in study recording
  • Vulnerable populations: persons lacking capacity for understanding participation in this study

Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.

Healthy volunteers: Yes

Study design

Observational model
Cohort

Study locations

United States · 1 center
  • Mayo Clinic in Rochester — Rochester

Identifiers

NCT: NCT07381179 · 25-006417 · NCI-2026-00073 · 25-006417

Primary sources (government registries)

View this study on ClinicalTrials.gov ↗