Recruiting NCT07357558
A Qualitative Study Investigating the Lived Experiences and Impact of Reproductive Issues in Adults With Primary Ciliary Dyskinesia
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- The protocol lists: Interview only.
- Who it may be relevant to
- Registry conditions: Primary Ciliary Dyskinesia (PCD). Basic parameters: from 18 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- United Kingdom
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
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Overview
Study involving undertaking research interviews with adults who have primary ciliary dyskinesia in the UK about their views and experiences of fertility, pregnancy and parenthood
Interventions
- Other Interview only
No intervention
Primary outcome measures
- Qualitative description of views and experiences of participants [Time frame: Explored during study interview (day 1)]
Eligibility criteria
Inclusion criteria
- Lives in United Kingdom
- 'likely' or 'confirmed' diagnosis of PCD
- able and willing to sign the consent form
Exclusion criteria
- unwilling to participate in the study
- not meeting inclusion criteria
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Observational model
- Other
Study locations
United Kingdom · 1 center
- University Hospitals Southampton NHS Trust — Southampton
Identifiers
NCT: NCT07357558 · RHM O&G0332