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Recruiting NCT07351422

Investigating Management, Perspectives and Attitudes Towards Care in Takayasu Arteritis

— Observational Takayasu Arteritis Takayasu Arteritis (TAK)

For patients and families

In plain language

An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.

What is being studied
The protocol lists: Questionnaire.
Who it may be relevant to
Registry conditions: Takayasu Arteritis, Takayasu Arteritis (TAK). Basic parameters: from 18 years · All.
What needs checking
Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
Where it takes place
United Kingdom
Next step
Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →

Unsure about the terms? Read our patient guide →

Overview

This study aims to understand the experiences of patients with Takayasu arteritis (TAK) and how physicians manage the condition. To achieve this, two separate questionnaires will be conducted: one for patients and one for physicians.

Detailed description

This study aims to investigate the experiences and perceptions of patients with Takayasu arteritis regarding their disease, as well as the perspectives of physicians regarding the management and treatment of these patients.

Patients with TAK will be invited to complete an anonymous online (Online Surveys) questionnaire, which will take approximately 25 minutes and will consist of multiple-choice and short-answer questions. The questionnaire will ask about their experience with the condition, symptoms, treatments they have received, and any concerns or priorities they have regarding their care.

Physicians who treat TAK will also be invited to complete a separate online questionnaire, taking around 15 minutes and also consisting of multiple-choice and short-answer questions. This will explore how they diagnose and manage TAK, their choice of treatments, and any challenges they face in treating the condition

Interventions

  • Other Questionnaire
    An online annoymous questionnaire consisting of short-answer and multiple-choice questions

Primary outcome measures

  • Patient Perspective [Time frame: Day 1]
  • Physician Perspective [Time frame: Day 1]

Eligibility criteria

Inclusion criteria

For the patient questionnaire:

  • Age ≥ 18 years
  • A formal diagnosis of TAK

For the physician questionnaire

  • A physician involved in the management/decision-making for patients diagnosed with TAK

Exclusion criteria

For the patient questionnaire:

  • Age < 18 years
  • Lack of a formal diagnosis of TAK
  • Patients without mental capacity or willingness to provide informed consent
  • Not UK based

For the physician questionnaire

  • Not involved in the management/ decision making for patients diagnosed with TAK
  • Not willing to take part
  • Not UK based

Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.

Healthy volunteers: No

Study design

Observational model
Case-only

Study locations

United Kingdom · 1 center
  • University of Edinburgh — Edinburgh

Identifiers

NCT: NCT07351422 · 25-EMREC-064

Primary sources (government registries)

View this study on ClinicalTrials.gov ↗