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Recruiting NCT07344012

Parental Project Amongst 93 Patients With Turner Syndrome

— Observational Turner Syndrome

For patients and families

In plain language

An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.

What is being studied
This is an observational study: the protocol does not assign a study treatment.
Who it may be relevant to
Registry conditions: Turner Syndrome. Basic parameters: 18 years — 40 years · Female.
What needs checking
Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
Where it takes place
France
Next step
Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →

Unsure about the terms? Read our patient guide →

Overview

The aim is to describe the parental project, spontaneous pregnancies and pregnancies resulting from egg donation or adoption in women diagnosed with Turner syndrome treated at Strasbourg University Hospitals.

Primary outcome measures

  • Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents [Time frame: Up to 24 months]

Eligibility criteria

Inclusion criteria

  • Adult women (≥18 years old)
  • Treated at Strasbourg University Hospitals for a parental project during the period from January 1, 2009, to December 31, 2019
  • Having presented with Turner syndrome confirmed by karyotyping
  • Having expressed a desire to become a parent during consultation

Exclusion criteria

  • No desire to become a parent or missing data
  • Missing data

Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.

Healthy volunteers: No

Study design

Observational model
Case-only

Study locations

France · 1 center
  • Service d'Endocrinologie, Diabétologie, Nutrition - CHU de Strasbourg - France — Strasbourg

Identifiers

NCT: NCT07344012 · 9945

Primary sources (government registries)

View this study on ClinicalTrials.gov ↗