Relationship Between Cognition, Workforce Participation and Well-Being in Individuals With Multiple Sclerosis
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- This is an observational study: the protocol does not assign a study treatment.
- Who it may be relevant to
- Registry conditions: Multiple Sclerosis. Basic parameters: 18 years — 65 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Sweden
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
Unsure about the terms? Read our patient guide →
Official title
Improving Workforce Participation and Well-Being in Individuals With Multiple Sclerosis
Overview
Multiple sclerosis (MS) is a chronic neurodegenerative disease and a leading cause of reduced workforce participation due to neurological illness in Western countries. Over the past 30 years, new treatments have reduced symptom burden, allowing patients to stay in the workforce longer. However, fatigue and cognitive impairments remain major barriers to work capacity. This project aims to examine factors important for work ability and well-being in persons with MS and cognitive impairments. The specific research questions are: 1. How do job type and opportunities for workplace adaptations influence work ability and well-being in individuals with MS and cognitive impairments? 2. What are the associations between cognitive function in MS and work ability as well as well-being? The investigators plan to collect data on patients with MS who have undergone a neuropsychological assessment at the neurology clinic in Region Gävleborg over a five year period. Approximately 100 patients are eligible for participation. Data will be collected through surveys and by extracting information from medical records. The surveys include questions related to well-being and work ability. Data from medical records contain data from the neuropsychological assessment, other rehabilitation interventions as well as data related to treatment and progress of MS. The findings from the study aim to enhance work-oriented rehabilitation and provide a deeper understanding of how to support individuals with MS in maintaining employment and overall well-being
Primary outcome measures
- Work participation [Time frame: Baseline]
- Hospital anxiety and depression scale (HADS) [Time frame: Baseline]
- WHO-5 Well-Being Index [Time frame: Baseline]
- Brief index of job satisfaction (BIAJS) [Time frame: Baseline]
Secondary outcome measures (2)
- Work-life balance [Time frame: Baseline]
- Can-Work-S [Time frame: Baseline]
Eligibility criteria
Inclusion criteria
Multiple sclerosis Age between 18-65 Performed a neuropsychological assessment at the Neurology department at Gävle Hospital during the last 5 years (counting from study start) -
Exclusion criteria
Other diagnosis hindering work participation more than MS
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Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Observational model
- Cohort
Study locations
Sweden · 1 center
- Gävle hospital — Gävle
Identifiers
NCT: NCT07211516 · MSCogWork2