Investigation of Catastrophizing of Pain Reported by Parents in JIA Patients
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- The protocol lists: Questionnaire application for JIA cases and their parents.
- Who it may be relevant to
- Registry conditions: Juvenile Idiopathic Arthritis (JIA), Childhood Rheumatic Diseases. Basic parameters: 7 years — 18 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Turkey (Türkiye)
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
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Official title
Investigation of Biopsychosocial Characteristics According to Catastrophizing of Pain Reported by Parents in Patients Diagnosed With JIA
Overview
Juvenile idiopathic arthritis (JIA) is the primary rheumatic disease reported to affect the pediatric population. Research suggests that parents' thoughts and feelings about their child's pain, specifically with JIA diagnosis, may influence treatment compliance. Considering that this situation may also affect children's adherence to treatment, the identification and management of parents' catastrophizing of pain is emphasized as important in improving treatment outcomes. This study aimed to examine the biopsychosocial characteristics of parents of children diagnosed with JIA according to their reported catastrophizing of pain.
Interventions
- Other Questionnaire application for JIA cases and their parents
Scales will be applied to cases diagnosed with JIA and their parents
Primary outcome measures
- Pain Catastrophizing Scale-Parent (PCS-P) [Time frame: Baseline]
- Pain Catastrophizing Scale-Children (PCS-C) [Time frame: Baseline]
Secondary outcome measures (5)
- Juvenile Arthritis Biopsychosocial Scale-JAB-Q-Patient [Time frame: Baseline]
- Childhood Health Assessment Questionnaire (CHAQ) [Time frame: Baseline]
- Juvenile Arthritis Quality of Life Questionnaire (JAQQ) [Time frame: Baseline]
- Juvenile Arthritis Biopsychosocial Scale-JAB-Q-Family [Time frame: Baseline]
- Child and Adolescent Scale of Participation (CASP) [Time frame: Baseline]
Eligibility criteria
Inclusion criteria
- Between 7-18 years of age
- Diagnosed with JIA
- Individuals who volunteer to participate in the study will be included.
Exclusion criteria
- Having advanced heart/lung/liver/kidney disease, neurological disease, or malignancies
- Having undergone major orthopedic surgery
- Not volunteering to participate in the study
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Observational model
- Cohort
Study locations
Turkey (Türkiye) · 1 center
- Hacettepe University — Çankaya
Identifiers
NCT: NCT07185750 · SBA 25/530