Implementation Research on the LILAC Method to Educate Management of Elevated Lipoprotein(a).
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- This is an observational study: the protocol does not assign a study treatment.
- Who it may be relevant to
- Registry conditions: Lipoprotein(a), Lipoprotein(a), Hyper-Lp(a)-Emia. Basic parameters: from 16 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Australia, Malaysia, Singapore
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
Unsure about the terms? Read our patient guide →
Overview
The goal of this observational study is to assess the if short educational videos about #LILAC-for-Lpa are feasible and accepted in improving the confidence, testing, and management on Lipoprotein(a).
Detailed description
The aims of this study are to (1) assess the feasibility of using these educational videos about LILAC-for-Lp(a) to help improve confidence, testing and the management of Lp(a), (2) assess the acceptability in using short education videos about LILAC-for-Lp(a) and (3) to understand the knowledge gaps of Lp(a) in medical professionals through the additional questionnaire provided.
Primary outcome measures
- Improvement of Knowledge and awareness of Lp(a) [Time frame: From enrolment to 3 months after]
Secondary outcome measures (2)
- Acceptance of Educational Videos [Time frame: From point of enrolment to 3 months]
- Lipoprotein(a) Testing [Time frame: During enrolment to 1 year]
Eligibility criteria
Inclusion criteria
- Participants include students, participants from institute of higher learning aged 16 and above.
- Participants aged 16 and above regardless of local or overseas, may also be from educational talks that Dr Loh is invited to speak at.
- Patients and members of the public aged 16 and above if they attend lipid awareness educational events.
- Participants aged 16 and above in patient support groups or patient advocacy networks.
Exclusion criteria
- Participants aged below 16 years old.
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Study design
- Observational model
- Cohort
Study locations
Australia · 1 center
- Online Portal, Australia — Perth
Malaysia · 1 center
- Online web portal — Kuala Lumpur
Singapore · 1 center
- Changi General Hospital — Singapore
Publications
- Loh WJ, Pang J, Simon O, Chan DC, Watts GF. Deficient perceptions and practices concerning elevated lipoprotein(a) among specialists in Singapore. Front Cardiovasc Med. 2025 Feb 14;12:1527351. doi: 10.3389/fcvm.2025.1527351. eCollection 2025. PMID 40027516
- Loh WJ, Watts GF, Lum E. A short educational video for improving awareness and confidence of healthcare professionals in managing lipoprotein(a): a pilot study based on LILAC-for-Lp(a). Eur J Cardiovasc Nurs. 2025 Jul 21;24(5):796-799. doi: 10.1093/eurjcn/zvaf052. No abstract available. PMID 40156158
Identifiers
NCT: NCT07177612 · CIRB2025-0274