Caregiver Bootcamp
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- The protocol lists: Synchronous/asynchronous online course.
- Who it may be relevant to
- Registry conditions: Dementia. Basic parameters: from 21 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- United States
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
Unsure about the terms? Read our patient guide →
Official title
Caregiver Bootcamp: Mastering the First Hundred Days
Overview
This study will assess the preliminary efficacy of a synchronous/asynchronous psychoeducation program designed to promote caregiving mastery in the immediate time period after a dementia diagnosis. It will also study the effects on caregiver and care recipient well-being.
Detailed description
The Caregiver Bootcamp program will employ psychoeducational methods (expert instruction, expectation of active learning by participants, debriefing and coaching linked to participant reports of application of strategies and principles) to enhance the proposed mechanism of action of the intervention, the enhancement of caregiving mastery - the individual's self-acknowledgement of self-efficacy for coping with the stresses of the new caregiving role.
The program is meant to provide basic orientation to the situation: recognize the reality of the condition; understand the shifts in mindset that the immediate situation demands; begin to recognize the shift in responsibility that will have to occur; and take practical steps to prepare for the future. The program will combine 5 weekly small group 90-120-minute online sessions with asynchronous instructional materials delivered 2-4 days in between sessions.
Interventions
- Other Synchronous/asynchronous online course
* Synchronous weekly 90-120-minute-long sessions that will be conducted on a videoconferencing platform (i.e., Zoom). If participants miss a synchronous session. * Asynchronous online course: available segments of the online course with asynchronous instructional materials delivered 2-4 days in between sessions, and supplemental course materials that will be received by mail.
Primary outcome measures
- Change in caregiver sense of mastery [Time frame: Baseline, 1 and 3-months post-intervention]
- Change in caregiver self-efficacy: symptom management scale [Time frame: Baseline, 1 and 3-months post-intervention]
- Change in caregiver self-efficacy: support services scale [Time frame: Baseline, 1 and 3-months post-intervention]
- Change in caregiver self-efficacy: medication management scale [Time frame: Baseline, 1 and 3-months post-intervention]
Eligibility criteria
Inclusion criteria
- over the age of 21;
- care partner/caregiver for a family or friend who has received a diagnosis of a form dementia from a healthcare provider in the last 6 months;
- has access to an electronic device and/or access to broadband internet; and
- able to speak and understand English. Caregivers are not required to be co-located with the care recipient.
Exclusion criteria
- considering moving the PLWD to an institutional setting within the next 6 months.
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Allocation
- N/A
- Model
- Single group
- Masking
- Open label
- Primary purpose
- Supportive care
Study locations
United States · 1 center
- Nell Hodgson Woodruff School of Nursing — Atlanta
Identifiers
NCT: NCT07006116 · STUDY00007427 · 2P30AG064200-06