Investigation of the Relationship Between Executive Functions and Occupational Performance of Children With Duchenne Muscular Dystrophy
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- The protocol lists: Evaluations.
- Who it may be relevant to
- Registry conditions: Executive Dysfunction, Occupational Problems, Duchenne Muscular Dystrophy. Basic parameters: 6 years — 12 years · Male.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Turkey (Türkiye)
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
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Overview
The effects of Duchenne muscular dystrophy and its treatments on executive functions and occupational performance are under-mentioned in the literature. The researches believe that developmental and cognitive research is needed to identify interventions for children with DMD to identify and adapt to both individual and social environments, including self-care, productivity and leisure activities. Therefore, the aim of this study was to examine executive functions and occupational performance in children with DMD and compare them with healthy controls.
Interventions
- Other Evaluations
Evaluations of executive functions and occupational performance
Primary outcome measures
- Demographic information form [Time frame: one-time evaluation]
- Brooke upper extremity functional scale [Time frame: one-time evaluation]
- Vignos lower extremity functional scale [Time frame: one-time evaluation]
- The Childhood Executive Functioning Inventory [Time frame: one-time evaluation]
- Canadian Occupational Performance Measure [Time frame: one-time evaluation]
Eligibility criteria
Inclusion criteria
- Being diagnosed with DMD
- Volunteering to participate in the study by their parents and reading and signing the informed consent form
Exclusion criteria
- Having a neuromuscular disease other than DMD and/or another diagnosed neuromuscular disease accompanying DMD
- The family and/or the child has problems with cooperation in completing the assessments for any reason
- Difficulty understanding and speaking the Turkish language
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: Yes
Study design
- Observational model
- Other
Study locations
Turkey (Türkiye) · 1 center
- Lokman Hekim University — Ankara
Identifiers
NCT: NCT06868784 · 2023025