End-of-life Decision-making Among Young Patients With Advanced Cancer: a Grounded Theory Approach
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- This is an observational study: the protocol does not assign a study treatment.
- Who it may be relevant to
- Registry conditions: End-of-life Decision-making. Basic parameters: 18 years — 39 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Taiwan
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
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Overview
The purpose of this qualitative research is to use grounded theory to explore and describe the thoughts of young advanced cancer patients regarding end-of-life care and how these thoughts influence the related decision-making process.
Primary outcome measures
- Interview Guide [Time frame: 2024/7~2025/7]
Eligibility criteria
Inclusion criteria
- The patient has a solid tumor.
- The age at initial cancer diagnosis is between 15 and 39 years.
- The patient is at least 18 years old at the time of enrollment.
- The patient has cancer with metastasis, either present at initial diagnosis or occurring after treatment or follow-up.
- After metastasis, the first-line curative treatment is ineffective.
Exclusion criteria
\- Patients who, for any reason, including severe psychological distress (as determined by the attending physician, psychiatrist, or specialist nurse based on assessments and impressions during routine patient care), cognitive impairment, or physical limitations (such as frailty), are unable to communicate or participate in an interview lasting more than 30 minutes.
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Observational model
- Other
Study locations
Taiwan · 1 center
- National Taiwan University Hospital — Taipei
Identifiers
NCT: NCT06551831 · 202406142RINE