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Recruiting NCT06522334

Interstitial Lung Disease Registry Study: Prospective and Retrospective Observational Study in Austria

— Observational Interstitial Lung Disease

For patients and families

In plain language

An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.

What is being studied
This is an observational study: the protocol does not assign a study treatment.
Who it may be relevant to
Registry conditions: Interstitial Lung Disease. Basic parameters: from 18 years · All.
What needs checking
Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
Where it takes place
Austria
Next step
Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →

Unsure about the terms? Read our patient guide →

Overview

The goal of this registry is to systematically record epidemiological and clinical data throughout the whole interstitial lung disease course - starting with the diagnosis, therapy, follow up of lung function, symptom control, adverse events, medication, survival and death. There are no additional interventions regarding this registry.

Primary outcome measures

  • Mortality [Time frame: 10 years]
  • Loss of lung function [Time frame: 2 years]
Secondary outcome measures (2)
  • Prevalence [Time frame: 10 years]
  • Response to drugs [Time frame: 10 years]

Eligibility criteria

Inclusion criteria

  • diagnosis of interstitial lung disease
  • written informed consent

Exclusion criteria

  • to not comprehend and rightfully judge participation

Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.

Healthy volunteers: No

Study design

Observational model
Cohort

Study locations

Austria · 5 centers
  • Klinik Hietzing — Vienna
  • Klinik Penzing — Vienna
  • Ludwig Boltzmann Institut for Lung Health — Vienna
  • Klinik Ottakring — Vienna
  • Klinik Floridsdorf — Vienna

Identifiers

NCT: NCT06522334 · ILD Registry

Primary sources (government registries)

View this study on ClinicalTrials.gov ↗