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Recruiting NCT06461000

EULAR Impact of Rheumatic and Musculoskeletal Diseases Survey

— Observational Rheumatologic Disease Musculoskeletal Diseases

For patients and families

In plain language

An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.

What is being studied
The protocol lists: Survey.
Who it may be relevant to
Registry conditions: Rheumatologic Disease, Musculoskeletal Diseases. Basic parameters: from 18 years · All.
What needs checking
Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
Where it takes place
Switzerland
Next step
Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →

Unsure about the terms? Read our patient guide →

Overview

The EULAR Impact of RMDs Survey collects first-hand information about the impact of rheumatic and musculoskeletal diseases (RMDs) among patients across and beyond Europe. Through periodic questionnaires, patients will provide information about their healthcare situation, and how the disease affects their social and occupational lives. This data will be an important resource for researchers, healthcare professionals, and patients alike, providing valuable insights into the burden of disease and helping improve the overall care for people living with these conditions.

Interventions

  • Other Survey
    online survey for participants

Primary outcome measures

  • General population description - country [Time frame: every 6 months for up to 5 years]
  • General population description - diagnosis [Time frame: every 6 months for up to 5 years]
  • General population description [Time frame: every 6 months for up to 5 years]
Secondary outcome measures (12)
  • Diagnosis history - physician treating the RMD [Time frame: every 6 months for up to 5 years]
  • Diagnosis history - outpatient care history [Time frame: every 6 months for up to 5 years]
  • Diagnosis history - timeline [Time frame: every 6 months for up to 5 years]
  • Diagnosis history - Inpatient care [Time frame: every 6 months for up to 5 years]
  • Non-pharmacological and pharmacological treatments. [Time frame: every 6 months for up to 5 years]
  • Other chronic diseases [Time frame: every 6 months for up to 5 years]
  • Disease burden - impact of disease [Time frame: every 6 months for up to 5 years]
  • Disease burden - health assessment [Time frame: every 6 months for up to 5 years]
  • Disease burden - quality of life [Time frame: every 6 months for up to 5 years]
  • Consequences on work and life (WPAI questionnaire) [Time frame: every 6 months for up to 5 years]
  • Other barriers due to RMD [Time frame: every 6 months for up to 5 years]
  • Health care [Time frame: every 6 months for up to 5 years]

Eligibility criteria

Inclusion criteria

  • 18-year-old at time of baseline survey
  • Living in a EULAR country at time of baseline survey
  • Diagnosed with at least one RMD
  • Valid personal e-mail address
  • Being able to use an internet website

Exclusion criteria

  • none

Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.

Healthy volunteers: No

Study design

Observational model
Cohort

Study locations

Switzerland · 1 center
  • EULAR — Kilchberg

Identifiers

NCT: NCT06461000 · EPI001

Primary sources (government registries)

View this study on ClinicalTrials.gov ↗