Recruiting NCT06405997
The Genotype and Phenotype of Lymphangioleiomyomatosis
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- This is an observational study: the protocol does not assign a study treatment.
- Who it may be relevant to
- Registry conditions: Sporadic Lymphangioleiomyomatosis, TSC-associated Lymphangioleiomyomatosis. Basic parameters: from 18 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Taiwan
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
Unsure about the terms? Read our patient guide →
Overview
This study aims to differentiate between sporadic Lymphangioleiomyomatosis and Tuberous Sclerosis Complex-associated Lymphangioleiomyomatosis.
Primary outcome measures
- The genotype and phenotype of lymphangioleiomyomatosis [Time frame: one month]
Eligibility criteria
Inclusion criteria
- age ≥ 18 y/o
- Patient with Chest CT showed cystic lung disease, suspected Lymphangioleiomyomatosis
Exclusion criteria
- age < 18 y/o
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Observational model
- Cohort
Study locations
Taiwan · 1 center
- National Taiwan University Hospital — Taipei
Identifiers
NCT: NCT06405997 · 202401140RINE