Unmet Needs, Barriers and Facilitators to Vision Services for Children and Adolescents With Special Vision
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- The protocol lists: observational study, no intervention.
- Who it may be relevant to
- Registry conditions: Vision Disorders. Basic parameters: 19 years — 99 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- Taiwan
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
Unsure about the terms? Read our patient guide →
Official title
Unmet Needs, Barriers and Facilitators to Vision Services for Children and Adolescents With Special Vision Care Needs: A Mixed-Model Design Study
Overview
Children and adolescents with special needs, compared to those with general development, have a much higher incidence of visual impairments (10.5% vs. 0.16%). This project will focus on "children and adolescents with special visual care needs", comprehensively exploring their unmet needs in ophthalmology and visual care, as well as the obstacles and facilitators they may encounter in the process of seeking ophthalmic services. The purposes of this study will investigate the current needs of children and adolescents with special visual care needs in ophthalmology and visual medical services, and the obstacles and potential facilitators encountered by children and adolescents with special visual care needs in the process of obtaining ophthalmology and visual medical services.
Detailed description
The research will center on children and adolescents with special visual needs and explore the research questions from various stakeholders' perspectives, including parents, special education teachers and experts, healthcare professionals, workers from related NGOs and government units. A mixed-methods research approach will be used to gather both quantitative and qualitative data. After data analysis, a comparison and interpretation between the two results will be conducted to obtain the final research outcomes.
1. Quantitative research: Two-part questionnaire. The first part collects background information, and the second part is a "Needs and Difficulties Survey", framed by Levesque et al.'s conceptual framework of access to healthcare. 2. Qualitative research: The first part consists of semi-structured in-depth interviews, and the second part uses the focus group method. Both parts will use a common interview guideline and the International Classification of Functioning, Disability and Health, Child \& Youth Version (ICF-CY) as the theoretical framework.
Interventions
- Other observational study, no intervention
no intervention
Primary outcome measures
- qualitative data analysis [Time frame: 3 weeks]
Eligibility criteria
Inclusion criteria
- Able to read, understand, and fill out questionnaires in Chinese
- Able to conduct interviews in Chinese
Exclusion criteria
- The special needs children or adolescents they have taught do not have specific visual needs, hence they cannot provide relevant information.
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: Yes
Study design
- Observational model
- Case-only
Study locations
Taiwan · 1 center
- Department of Occupational Therapy, College of Medicine, Nation — Taipei
Identifiers
NCT: NCT05921240 · 202305123RIND