Susan G. Komen's ShareForCures
For patients and families
In plain language
An automatic summary of structured registry data. It is an orientation aid, not a substitute for the official protocol or a physician assessment.
- What is being studied
- This is an observational study: the protocol does not assign a study treatment.
- Who it may be relevant to
- Registry conditions: Breast Cancer. Basic parameters: from 18 years · All.
- What needs checking
- Age, condition and sex are only basic indicators. Prior treatment, laboratory values and other mandatory requirements appear in the eligibility criteria below.
- Where it takes place
- United States
- Next step
- Save the trial, show it to the treating physician, and confirm current recruitment with the study center. Costs, documents and travel →
Unsure about the terms? Read our patient guide →
Official title
ShareForCures: Susan G. Komen's People-powered, Data-driven Breast Cancer Research Registry
Overview
ShareForCures (SFC) is a community-based participatory research registry, and its prime objective is to engage participants representative of the United States breast cancer patient population -including minoritized and historically marginalized people, persons, or communities-to ensure the data researchers use to study breast cancer is as diverse as the people touched by this disease. In doing so, researchers will have a better understanding of breast cancer, and everyone can potentially benefit from scientific advances and improvements in care.
Detailed description
ShareForCures (SFC) will be a people-powered, data-driven breast cancer registry that will provide a way for individuals from diverse backgrounds to participate in research and enable participants' data to be used for breast cancer research. The overarching goal of SFC is to create a robust research resource comprised of clinical, biological, socio-behavioral, and other data from up to 200,000 people with breast cancer-including minoritized and historically marginalized people, persons, or communities-to ensure the data, researchers use to study breast cancer, is as diverse as the people touched by this disease. In doing so, researchers will have a better understanding of breast cancer and everyone can potentially benefit from scientific advances and improvements in care.
Primary outcome measures
- Engage participants representative of the United States breast cancer patient population in ShareForCures. [Time frame: 10 years]
- Integrate participant data into ShareForCures. [Time frame: 10 years]
- Facilitate scientific research using ShareForCures data. [Time frame: 10 years]
Eligibility criteria
Inclusion criteria
- Individuals must be at least 18 years old. (Individuals in Alabama and Nebraska must be over 19 and individuals in Mississippi and Pennsylvania must be over 21 to participate).
- Individuals must have been diagnosed with cancer originating (or is suspected to originate) from the breast.
- Individuals must be currently residing in the United States or a territory of the United States.
- Individuals must be able to read and understand English.
Exclusion criteria
- Individuals under the age of 18 years. (Individuals in Alabama and Nebraska under 19 and individuals in Mississippi and Pennsylvania under 21 are not eligible to participate).
- Individuals without a diagnosis of breast cancer.
- Individuals who are not residing in the United States or a territory of the United States.
- Individuals unable to read and understand English.
Criteria are shown verbatim from the registry (in English). Final eligibility is always assessed by the study center.
Healthy volunteers: No
Study design
- Observational model
- Other
Study locations
United States · 1 center
- Susan G. Komen — Dallas
Identifiers
NCT: NCT05654246 · SGK-SFC-001